Thursday, November 25, 2004
I have had so much fun today - well not fun at the hospital but after that - I got in on time despite the bus being late - it was freezing cold - and mum had told me to wear her coat in case it rained - so I didn’t have my cardigan on as I knew it would be too hot in the hospital but I just about froze to death waiting for the bus - I got a coffee on the way to the clinic and as I got to the desk there seemed to be a lo tof confusion as the guy in front of me was expecting to see Mr Robinson and the receptionist AND a nurse were denying all knowledge of a Mr Robinson in the hospital let alone in clinic 12 (“There is no one of that name working here”) - so I butted in - as you do, and told them I was also expecting to see him with Dr Dinneen in the combined orthopaedic / diabetic foot clinic - reassuringly they knew who Dr Dinneen was, but told me there was no Mr Robinson in the clinic that day - I went to sit down and saw Mr Robinson in one of the rooms making a phone call - you’d think someone working in Clinic 12 would at least know WHO Mr Robinson was, even if they didn’t know he was there. I was going to tell him he didn’t exist but I wasn’t sure he would find it as funny as I did. I got in pretty quickly - and saw Mr Robinson, he was quite cheerful and STILL going on about making the right decision - I don’t think he will be happy until I get down on my knees and shout “ALL HAIL THE FOOT EXPERT WHO IS ALWAYS RIGHT” and then sacrifice a chicken in his honour.
They had my shoes and I tried them on - they were pretty comfy - until I tried to walk and I think I must had looked as awkward as it felt - it’s not a huge problem - they are going to change the heel as I was slapping my foot on the ground and it just didn’t feel very natural - it should only be another week or so, I am happy with that as I would have felt a bit disappointed if they had told me to go home and get used to it.
I saw Dr Dinneen for a bit of a chat about the transplant - I think I had made up my mind before but after talking with him I am undecided again but I think I am heading in the kidney transplant now, islet cell transplant later and continue with the pump in the mean time - I feel bad as I like Chris Watson and Paul Williams and I think a pancreas would help the GP more than my control of the pump will. However it is a big operation and the islet cell transplant may even be possible as an out patient procedure. I may still see Chris and Paul for the kidney transplant - I don’t think I want to lose any more of my favourite doctors right now. I didn’t blub or say anything stupid to Dr Dinneen - we just talked about his star and that his kids are looking forward to finding it with him - he said he will be keeping contact with Addenbrookes and so he will be able to find out how I am getting on - it was nice to have a conclusion- if you can call it that - with my foot before he went - I forgot to ask who will be taking over my care but I daresay they will tell me next time I am in clinic - Mr Robinson doesn’t want to see me for another 2 months which must be a good thing. I told him I thought it was moving more and not fused any more - he agreed with me (which was nice!) but said it was stable at the moment. I guess time will tell once I start walking on it without the boot - the shoes seem to have a bit of support in all the right places and when I tried them on it was so nice to have even legs!! It took a while for me to stand up straight as I have adapted already to having one leg shorter and as soon as I did I felt the tension leave my back - I can’t wait to get them for keeps, though they say I have to start wearing them in 5 minutes at a time!! I was hoping to wear them home!!!
I was finished by 11am so I decided to go into town and have a look around - I haven’t been in to Cambridge for years and it was so nice walking around like a normal person - I saw so many things I wanted to buy. I went into M&S and there was just so many things I could have spent my vouchers on I just picked up a catalogue and will choose at my leisure at home. Then I got my ears pierced again! I only had one in one ear and two in the other so now I have three in one ear and two in the other - it’s a pair of gold stars which are Christmassy enough as I can’t change them until next year now. She did ask if I had any serious illnesses like Diabetes so I owned up to that one but I declined to mention anything else - I know it’s an infection risk but I will be very careful and I figured it was better to get them pierced now than after the transplant when I have no immune system. I just hope they don’t get infected - I WILL wash my hands before I touch them!
I got a few other Christmas bits but I really need to go back with a plan of action - and more time. I had lunch on the run - I bought a cup of Butternut Squash soup from “Eat” which is where Dorothy Perkins used to be, and drank that while I was walking around - I felt a bit sick but I managed to last until I got home - I bought a few dog treats and so Ash was almost pleased to see me although he did make it clear that he was not happy to be left alone all afternoon - I got in at just gone 3pm which wasn’t too bad.
My toe is still sore - I mentioned it in clinic but they didn’t seem particularly interested - I think I did bash it - the nail is going a bit grey so no doubt it will fall off again at some point. They were surprised to hear I had pseudo gout in my knee - they had all suspected another Charcot’s joint so I guess the pseudo gout is the nicer option. If it gets really sore again then Lucy can refer me back to the rheumatologist. It’s already starting ot swell and so I daresay I will need another injection in three weeks when I see her again.
Last night I was kept awake by mum vomiting - I was worried as I felt fine so I assumed it couldn’t have been anything we’d eaten but then she said she’d eaten half a bag of nuts and she was sure that’s what did it - she was throwing up for ages and I offered her one of my tablets but she said no - then about half an hour later this feeble little voice said “have you got any tablets up here?” which I hadn’t so I went downstairs and got her one of my ondansetron tablets - I know they are prescription only and you shouldn’t ever give out drugs not prescribed for you but she was desperate - I gave her one and she went back to bed - prepared to continue throwing up but miraculously she fell asleep and was fine. It must have been the nuts as I ate everything else that she did and if anything was bad it would have made me throw up first. She is feeling a bit better - I think she had a bit of a dodgy belly all day but she is eating jelly sweets right now so I guess she is alright. But let that be a warning - don’t eat Aldi salted mixed nuts!! They make you puke!!
So, when mum got in from work she brought a big parcel with her - I could see her accusing me already and the look said “What the hell have you been ordering NOW???” I wasn’t expecting anything and I opened up the parcel to find it contained stuff I had no recollection of ordering - it was a prize!!!! I have actually won a competition!! It was a set of travel bags for carrying and storing cross stitch equipment - of course it didn’t contain any cross stitch equipment but I think I have enough to use it. How exciting - after all the hundreds of competitions I have entered to win holiday and thousands of pound - I win yet another bag - it’s not as if I don’t have HUNDREDS of bags already - still it’s nice to win something at last!
So all in all - apart from the horrible hypo I just endured - today was a bloody good day.
They had my shoes and I tried them on - they were pretty comfy - until I tried to walk and I think I must had looked as awkward as it felt - it’s not a huge problem - they are going to change the heel as I was slapping my foot on the ground and it just didn’t feel very natural - it should only be another week or so, I am happy with that as I would have felt a bit disappointed if they had told me to go home and get used to it.
I saw Dr Dinneen for a bit of a chat about the transplant - I think I had made up my mind before but after talking with him I am undecided again but I think I am heading in the kidney transplant now, islet cell transplant later and continue with the pump in the mean time - I feel bad as I like Chris Watson and Paul Williams and I think a pancreas would help the GP more than my control of the pump will. However it is a big operation and the islet cell transplant may even be possible as an out patient procedure. I may still see Chris and Paul for the kidney transplant - I don’t think I want to lose any more of my favourite doctors right now. I didn’t blub or say anything stupid to Dr Dinneen - we just talked about his star and that his kids are looking forward to finding it with him - he said he will be keeping contact with Addenbrookes and so he will be able to find out how I am getting on - it was nice to have a conclusion- if you can call it that - with my foot before he went - I forgot to ask who will be taking over my care but I daresay they will tell me next time I am in clinic - Mr Robinson doesn’t want to see me for another 2 months which must be a good thing. I told him I thought it was moving more and not fused any more - he agreed with me (which was nice!) but said it was stable at the moment. I guess time will tell once I start walking on it without the boot - the shoes seem to have a bit of support in all the right places and when I tried them on it was so nice to have even legs!! It took a while for me to stand up straight as I have adapted already to having one leg shorter and as soon as I did I felt the tension leave my back - I can’t wait to get them for keeps, though they say I have to start wearing them in 5 minutes at a time!! I was hoping to wear them home!!!
I was finished by 11am so I decided to go into town and have a look around - I haven’t been in to Cambridge for years and it was so nice walking around like a normal person - I saw so many things I wanted to buy. I went into M&S and there was just so many things I could have spent my vouchers on I just picked up a catalogue and will choose at my leisure at home. Then I got my ears pierced again! I only had one in one ear and two in the other so now I have three in one ear and two in the other - it’s a pair of gold stars which are Christmassy enough as I can’t change them until next year now. She did ask if I had any serious illnesses like Diabetes so I owned up to that one but I declined to mention anything else - I know it’s an infection risk but I will be very careful and I figured it was better to get them pierced now than after the transplant when I have no immune system. I just hope they don’t get infected - I WILL wash my hands before I touch them!
I got a few other Christmas bits but I really need to go back with a plan of action - and more time. I had lunch on the run - I bought a cup of Butternut Squash soup from “Eat” which is where Dorothy Perkins used to be, and drank that while I was walking around - I felt a bit sick but I managed to last until I got home - I bought a few dog treats and so Ash was almost pleased to see me although he did make it clear that he was not happy to be left alone all afternoon - I got in at just gone 3pm which wasn’t too bad.
My toe is still sore - I mentioned it in clinic but they didn’t seem particularly interested - I think I did bash it - the nail is going a bit grey so no doubt it will fall off again at some point. They were surprised to hear I had pseudo gout in my knee - they had all suspected another Charcot’s joint so I guess the pseudo gout is the nicer option. If it gets really sore again then Lucy can refer me back to the rheumatologist. It’s already starting ot swell and so I daresay I will need another injection in three weeks when I see her again.
Last night I was kept awake by mum vomiting - I was worried as I felt fine so I assumed it couldn’t have been anything we’d eaten but then she said she’d eaten half a bag of nuts and she was sure that’s what did it - she was throwing up for ages and I offered her one of my tablets but she said no - then about half an hour later this feeble little voice said “have you got any tablets up here?” which I hadn’t so I went downstairs and got her one of my ondansetron tablets - I know they are prescription only and you shouldn’t ever give out drugs not prescribed for you but she was desperate - I gave her one and she went back to bed - prepared to continue throwing up but miraculously she fell asleep and was fine. It must have been the nuts as I ate everything else that she did and if anything was bad it would have made me throw up first. She is feeling a bit better - I think she had a bit of a dodgy belly all day but she is eating jelly sweets right now so I guess she is alright. But let that be a warning - don’t eat Aldi salted mixed nuts!! They make you puke!!
So, when mum got in from work she brought a big parcel with her - I could see her accusing me already and the look said “What the hell have you been ordering NOW???” I wasn’t expecting anything and I opened up the parcel to find it contained stuff I had no recollection of ordering - it was a prize!!!! I have actually won a competition!! It was a set of travel bags for carrying and storing cross stitch equipment - of course it didn’t contain any cross stitch equipment but I think I have enough to use it. How exciting - after all the hundreds of competitions I have entered to win holiday and thousands of pound - I win yet another bag - it’s not as if I don’t have HUNDREDS of bags already - still it’s nice to win something at last!
So all in all - apart from the horrible hypo I just endured - today was a bloody good day.
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